The Beginning

 

I was being judged, at times dismissed

For me, everyone had a piece of advice

"Some are late bloomers, some are too shy

Not to worry, all phases pass by..."

Denial, I confess was very comforting

and how I wished that they were right!

Yet part of me was constantly looking

for missing links, for missed signs.

Then came the day doc officially told

Ground under my feet simply couldn't hold

I wept and my heart bled for my child

Why was he chosen to be some way deprived?

But soon I discovered that I was strong

and determined to connect him with the world

Though it may take long, I'd go any length

To make my perfect child's life perfect!

I had run out of tears and out of stress

He trusted me, I knew I was blessed

The differences now did hardly count

but accepting hem gave workarounds

For reaching him, knowing his mind

and as we do, fresh air we find 

I see a novel world through his eyes

So much in him to shine and rise!

Can't be weighed nor be measured

conversations with him are such a treasure

Sharing how we started winning

do watch my space, this is just beginning.

By,

Anagha Jawalekar

I had run out of tears and stress...yes literally true...

Akshat is our only son and as I mentioned in my first post that when he was officially diagnosed with Autism, till then I had no idea about its magnitude and the prognosis. It was only when my first mother child training started I came to know that it is a permanent disorder and my son has to live with it. There are no medicines to 'cure' the condition and only therapies can help him to live a productive life.

During the training, the obvious question came to my mind also, 'Why me' ....I have struggled all my life for basic happiness and now another life long struggle...I did not know how to react...whom to complaint...

Then I met my trainer, a 23-24 year old young lady, full of energy and enthusiasm. She counselled all of us in the group and made us comfortable. Looking at her, I thought if an young lady like her can work for my child so dedicatedly why can't I...after all I am the mother. The moment that thought came, I decided that I have to work for my child. I realized that it would be a journey without destination but I decided to just go on and on ...

In this journey, there were times when I feel frustrated, wanted to give up, cried like anything but again thought that if I won't do it then who will? I have to keep patience. Everything will fall in place. Sometimes I feel that it I took time to understand Akshat otherwise he has always cooperated well. It is so very important to understand the child.

Now, we are at a stage where we talk (he types in MS-Word) with each other. This feeling is really can't be weighed nor be measured. A non verbal boy expressing to his core!

Sharing one more such conversation between us...Would love to have your feedback!

10-10-20

Me. You like to listen radio a lot...

Him. yes it gives me boost to work...

Me. O...that's nice...it means it works as a motivation for you...isn't it...

Him. Yes

Me. And you do this humming also...

Him. Yes...I do it because it help me in coping stress...

Me. So, listening song is your favourite time pass...

Him. Yes...I cannot live without music